I don’t know whether it’s medication or Parkinson’s itself, but I recently started reading porn books (stories, not pictures) I hadn’t bought any porn since i was a teenager! It became a real battle to avoid them for a while they’re very cheap and available. This is not only worry about the burden on my kidneys, which Clonazepam and the Dopamine drugs may be producing I also worry about the psychology impact. I’m reluctant to increase the Clonazepam, or indeed any of my meds, without trying to do more physical work first if I can. I’m going to try to adjust the two pre-sleep errors, the screen watching and the chocolate eating and see how it goes for a month or so then I’m going to talk to the Clinical Nurse, if she ever becomes available, or my Consultant about medication at my next review in June. I exercise but I’ve been watching too much telly on my laptop before sleeping. I have been avoiding caffeine in drinks during the day as well as in the evening, although I will eat chocolate. I’m very often (3-4 nights a week) wakeful for several hours a night. I have been taking a half dose of Clonazepam for several years, but for some months now it has not worked to improve my sleep patterns. Hi - read your post with interest, Roy as we are similar ages and on SInimet x5 per day, although I take Pramipexole and Opicapone. I’ll obviously need to make my own decision regarding what to do next but as I said, I’d like to hear any thoughts/observations if anyone would like to chip in? I told him about the insomnia and he said there were things they could do for me – I think he mentioned melatonin as one possibility? I bumped into him at a vaccination in October and we chatted for a while. S is the one who first called possible PD when I saw him nearly 3 years ago. You never seem to see the same person twice at my local practice, but there’s one chap I would perhaps like to talk to. I’m wondering whether to call the nurse about my insomnia, or to talk to my GP, or just try a few more things (I’ve had a go at the usual sleep hygiene tips, mediation etc). The lack of dexterity is particularly concerning for me – I was made redundant in Nov 2020, but got a temporary job (WFH due to pandemic!) However, this has now finished and I will need to find something else – I have considered looking at my pension pot for an income, as I’m wondering if I can hold down a job what with the dexterity issues and feeling so tired all the time but I digress. Actually, I was quite upbeat over the phone as I had been having a good couple of days, but I have been a bit worried about symptoms such as a general feeling of shakiness and lack of dexterity in my hands – this is generally before my next Sinemet is due, but I have put it down to sleep deprivation, rightly or wrongly. I mentioned the insomnia and my concerns about sleep deprivation to the Parkinson’s nurse at my last (telephone) appointment in November but she didn’t really say much. I have discovered that I can usually get to sleep after taking a Sinemet for some reason but I don’t think you’re supposed to take extra ones in the middle of the night! I usually get to sleep OK, but wake up after 1-3 hours and can’t get back to sleep. Some nights I’m lucky to get 4-5 hours sleep and often get as little as 2. I’ve suffered from insomnia on and off for as long as I can remember and have even sleepwalked on quite a few occasions in the past, but have been suffering the worst insomnia of my life over the past 6 months or so. I’m 59, diagnosed nearly 3 years ago and am on Sinemet 25/100mg four times a day plus Rasagiline 1mg daily. I’ll try not to ramble too much so please bear with me! Hi, I know there are a few posts on insomnia but I’m just looking for any thoughts/observations on my own current experience if that’s OK.
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